On December 17, 1998, as a result of legislation initiated by deCODE genetics, a Delaware biotechnology company operating in Reykjavik, Iceland’s parliament passed a law allowing a private company to build a genetic database. health information of the country.1 deCODE has done. has obtained an exclusive license to build Icelandic medical databases (including research and test results, treatments and side effects) and they can. The law also gives deCODE the exclusive right to benefit from commercial data for a period of 12 years.
Brief information
The Icelandic government has granted an exclusive license to deCODE genetics to build the country’s health database.
The debate over the issues of informed consent, privacy, scientific freedom, benefit, and commercial privacy is intense.
The question at hand is whether the laws used in the database can address the issues raised.
A debate that focuses on traditional principles iceland phone number database ignores the new challenges pose by advances in meical technology.
If the appropriate business position is to be determine and clarifi, the individual and public health benefits nee to be clearly define.
Are the rules over?
The debate before and after the draft law on the Icelandic data system was intense. two broad headings—mical ethical issues and scientific freom and commercial issues. . Ethical issues are clearly important and relevant to international conventions and policies relat to human rights. However, the way we categorize the issues in the debate can sometimes hide some things that should be consider and prevent us from asking if there is a nee to reform the traditional culture.
Better, cheaper health care?
The database won’t directly help each patient with their condition, say supporters of the database. Rather, it will be a tool to develop new or improve ways to achieve better health, prognosis, diagnosis, and treatment of iceland phone number list diseases and to establish appropriate methods of managing cost-effective health services. by providing information – for example, on genetics and environmental risk factors in common diseases and statistical information on diseases and treatment. The goal of health economics is secondary, but still important. Although the average health status and life expectancy of the population is high, Iceland’s health insurance system ranks sixth in the national health care expenditure chart. 5.
Using important tools
Iceland’s population of about 270 000 has a genetic history that makes it important for genetic research on common diseases (box). Supporters of the data, provide a unique opportunity to test this. It was also b2c email list said that since the information containe in the information was paid for from public funds and does not belong to other people or institutions
Importance of Icelandic data
Since World War II, tissue samples have been taken from many people and stored
Family trees are designe for most people
The standard of living of the people is equally good
Of course there will also be “spin offs” in terms of benefits to other individuals or groups. Pharmaceutical companies that interact with deCODE can develop and test new products. It is the position of the licensee and the licensee arrangement with Hoffmann-La Roche that has le to some great ones.
